Recognising the importance of collecting evidence and data from innovative treatments, the Bill team is committed to working with Oxford University who have agreed to develop a method of data collection and sharing which arise from the Bill.
Specially, following feedback from the consultation, we are committed to including an obligation on doctors that they must register innovative interventions and outcomes – including negative results – in order to be protected by the Bill.
There are some concerns, however, that this may put an added bureaucratic burden on doctors and therefore obstruct innovation.
So we are working with stakeholders including the Department of Health, to work out a way to introduce a register of innovation without burdening doctors with cumbersome administrative duties.
It has been the subject of much discussion – in particular with eminent, very senior and well respected medical Lords as the Bill works it’s way through the House of Lords.
We will keep the website updated with the latest developments.